SMA Awareness Month: Reflecting On The Changing Standard Of Care For Children with SMA

As August is Spinal Muscular Atrophy (SMA) Awareness Month, I started to think about how the standard care of children with neuromuscular conditions, SMA in particular, has changed in such a short space of time.

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Therapy in Practice – The (Lack Of) Provision Of Sleep Systems For Children

Wherever it is in the country that you practice, it is likely that the funding of sleep systems is very erratic. But why should this be?

Along with Seating, Standing and Walking, Supine postural supports (sleep systems) are a key component of a child’s 24-hour postural management programme but unfortunately, they are given much less recognition, research or reimbursement than the others.

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Addressing 24-Hour Activity Behaviours of Children With Cerebral Palsy

A recent study showed that 0% of children with Cerebral Palsy (CP) at GMFCS Level III are reaching all the recommended guidelines for activity or sleep. How do we address this as part of a 24 hour postural management programme?

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Measuring Progress in Walkers and Gait trainers: Where do we start?

The way we view childhood disability is changing.  As physiotherapists, we are being encouraged to shift our attention away from purely addressing a child’s body structure and function (that is interventions which focus on muscle length or strength) to a more holistic approach - one which understands how the child participates at home, at school and in their community.

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Breaking the cycle of asymmetries using 24-hour postural management

For those of us who work with children with disabilities, we seem to intuitively know that if the child stays in one position too long, then the body will take the "shape" of that position, and if the position is not in good alignment, the child will begin to develop postural asymmetries. So, we try to create a program that offers alternative positioning throughout the day while supporting the child to prevent asymmetries.

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Pros & Cons To Common Toilet Training Approaches

When it comes to children with additional needs, toilet training can understandably get pushed down the priority list, but the earlier you can make a start, the easier it will be.

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