by Rebekah Moynihan
on 24 August 2023
As August is Spinal Muscular Atrophy (SMA) Awareness Month, I started to think about how the standard care of children with neuromuscular conditions, SMA in particular, has changed in such a short space of time.
by Laura Finney
on 20 June 2023
Wherever it is in the country that you practice, it is likely that the funding of sleep systems is very erratic. But why should this be?
Along with Seating, Standing and Walking, Supine postural supports (sleep systems) are a key component of a child’s 24-hour postural management programme but unfortunately, they are given much less recognition, research or reimbursement than the others.
by Leckey
on 31 August 2022
A recent study showed that 0% of children with Cerebral Palsy (CP) at GMFCS Level III are reaching all the recommended guidelines for activity or sleep. How do we address this as part of a 24 hour postural management programme?
by Rebekah Moynihan
on 22 August 2022
The way we view childhood disability is changing. As physiotherapists, we are being encouraged to shift our attention away from purely addressing a child’s body structure and function (that is interventions which focus on muscle length or strength) to a more holistic approach - one which understands how the child participates at home, at school and in their community.
by Linda Bollinger
on 28 July 2022
For those of us who work with children with disabilities, we seem to intuitively know that if the child stays in one position too long, then the body will take the "shape" of that position, and if the position is not in good alignment, the child will begin to develop postural asymmetries. So, we try to create a program that offers alternative positioning throughout the day while supporting the child to prevent asymmetries.
by Leckey
on 17 May 2022
When it comes to children with additional needs, toilet training can understandably get pushed down the priority list, but the earlier you can make a start, the easier it will be.
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The Firefly range of portable products are all about participation. These posturally supportive products are clinically sound, practical and fun, ensuring children with additional needs can take part in everyday life. As well as products, Firefly facilitates an online community where advice and experiences are shared between parents, therapists and charities.
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